Publicly persecuted AIDS mother gets redemption

In Septemeber of this year, The LA Times reported that Christine Maggiore was irresponsible in not treating herself or her family with AZT. Her daughter, 3 1/2 year old Eliza Jane Scovill died suddenly May 16 2005 and the diagnosis was AIDS-related pneumonia.

Eliza had never been diagnosed with HIV and had been extremely healthy her whole life. She had been seen by doctors in the days proceeding her death for an ear infection, for which she was prescribed antibiotics. Eliza showed no other signs of being ill, least of all difficulty breathing or coughing.

Condemmed by the media and the public and still realing from her daughters death, Christine stayed strong in her convictions that AIDS does not need medical treatment...and that she and her family were doing well. Public officials have been poised to act to take the couples other child, Charlie, away from them.

New information has come to light that sheds a whole different spin on this story. Eliza did not die of AIDS-related pneumonia. She was NOT HIV positive and did NOT have full blown AIDS.
Eliza died from an allergic reaction to the antibiotic amoxicillin that she had been given that very week for an ear infection.

Yes, you read that right. She died from the medication DOCTORS gave her to treat her ear infection.

The LA Times article goes on to quote Dr James Oleske, a New Jersey physician that has NEVER seen Eliza (but does treat AIDS patients) by saying "This was a preventable death. I can tell you without a doubt that, at the outset of her illness, if she was properly evaluated, she would have been appropriately treated. SHE WOULD NOT HAVE DIED"

Well guess what Dr James Oleske from New Jersey. You were WRONG!!! Yes, her death was preventable....but not the way you insinuated. Avoiding the antibiotic-that would have done it.

I hope that Christine and her family can now mourn for the loss of their daughter without ridicule, suspicion and disbeleif.
Prayers go out to Christine, Robin, Charlie and sweet Eliza.

You can read more in the timeline here: http://justiceforej.com/ej-chronology.html#0924

hmm-interesting

You Belong in Rome

You're a big city girl with a small town heart Which is why you're attracted to the romance of Rome Strolling down picture perfect streets, cappuccino in hand And gorgeous Italian men - could life get any better?

What City Do You Belong In?

Your Element is Earth

Your power color: yellow Your energy: balancing Your season: changing of seasons Dedicated and responsible, you are a rock to your friends. You are skilled at working out even the most difficult problems. Low key and calm, you are happiest when you are around loved ones. Ambitious and goal oriented, you have long term plans to be successful.

What Element Are You?

So Kaitlyn and her neuro problems...take 1

I know that I have not talked about her neurological defect here...but the quick version is that Kaitlyn had a brain hemorrhage 3 years ago this Christmas. Through it all we found that she has Dural AVMand the locations of those AVM's are very rare.
We have to do testing every year.
She has had sudden onset reoccuring headaches the last 2 weeks, with increased clumsiness. We are going in tomorrow for anotherCT Angiogram
This never gets easy. I worry about her all the time. She has a headache, I freak out. It is just so hard.

What type of goth are you?

my profile picture recently led to hurt feelings over my husband saying his co-workers thought I looked GOTH.

so what type of goth are you?


VICTORIAN GOTH

Similar to Medieval
your style is known for dark, elegant, and
intricate dresses and suits. However, unlike
Medieval your style tends to be a lot more
conservatice with high, lace necks on the gowns
and top hats to go along with the gentlemen's
dark attire. I very much respect this style as
well, because it is sophisticated, noble, and
reserved.

What's your Gothic style? [Pics / 10 Results]
brought to you by

The most beautiful girl....

yup, she only has to look at me with those eyes, and she has me everytime.
The only one who kept my blue eyes.

The funniest ebay auction!

http://cgi.ebay.com/ws/eBayISAPI.dll?ViewItem&item=6225867209

This is a hand made bobble head of the psycho woman from Trading Spouses.

wow-time does fly doesn't it?

so in recent news...the doctors are finally talking to me! Noah's behavior is escalating. His violence/agression is worse. He has started banging his head again. He kicked his brother down the stairs the other day and has been hitting his 17 month old sister.
The answer? Looks like we will be starting with Zoloft. The doctor suggested Trazadone first, because Noah exhibits tendencies to have a seizure...but my research made me not want to try that.
So good news there. hopefully the zoloft will help his hyperirritability reactivity when he is angry.

Conner has his first gymnastics meet coming up December 9th! I just cannot believe it. He did his whole floor routine in practice yesterday and I was just in awe. He looks so good. Pictures are coming up and I will share.

Grandpa is still holding his own. The CT confirmed several strokes, but the therapy is helping some.

We are getting ready for Thanksgiving. We are going to a friends house since Shawn has to work, and I am very excited! Making my special mini-cheesecakes, pumpkin bread, blackbottom cupcakes and a veggie.

A few pictures from our visit

Me and Grandpa
Me, My Mom and My Grandpa
Grandma, Grandpa and the kids

My Grandfather Had a Stroke

I got an email last week from my mother (she could not find my phone number) She told me that my grandpa had a stroke.
My grandfather has been like a dad to me my whole life. with my bio dad being out of the picture-my grandparents helped to raise me. My grandpa is the only father figure I have ever had. He means the absolute world to me.
6 weeks ago they were out at my moms house. My grandpa felt sick so they decided to leave. As my grandma was driving home, he passed out. When he woke up he got sick. They took him in and the dr thought it was inner ear stuff. Fast forward to this last Friday. They were at my cousins game. When they went to leave..grandpa said he felt like he got stuck..couldn't get in the car. That is when he had a stroke. Saturday he couldn't walk...had slurred speech. Had to use a cane and could barely walk with that. He kept falling and fell when he was going to feed the horses..and banged up his face pretty good. Monday they took him in and the dr said he is having strokes..and it seems to be progressing fast.
So we drove down. He doesn't look too good. His facial muscles are not really affected, but his speech is pretty bad. he has a really hard time talking and he has a significant memory loss. his right side is almost useless. he has a walker, but refuses to use it. so we had to help him move everywhere. I had a talk with my grandma. he had this stroke on friday and she did not take him in until monday! if she would have gotten him in earlier, they could have given him the medication to help reverse the affects, but she didn't realize that a stroke had happened. we talked about the seriousness of letting the dr's know what is going on-and that she better not hestitate again. she asked me how I deal with it...with Kaitlyn and the worry. she then told me that grandpa won't let go of her...every time they go to bed he just holds her so tight and will not let go of her. He is so scared. but I think I got through to her. he is in therapy..and went in for a CT scan yesterday. they are also doing some cartoid vascular study this week.
By the time we left on Sunday, you could really see the changes in him. He was more positive, but his speech was worse. It was very slurred and he couldn't remember everyday words.
We are still waiting on test results. But I am just not ready to lose him.

I have my board!!

After a long desire to have a small parenting board where we could educate and have friendships-I finally decided to do it! My August 2002 playgroup (another small knit group) is going to need a new home sometime soon...so I decided to just go for it. Create a board with my friends where we could talk and have fun. And the best thing is that we can share educational links and articles. I hope to learn so much from these ladies. It is similar to another board I visit..but without the 3000+ members and will still have the personal touches. People will not be ignored. We can post and get answers.
Right now it is very raw..we are just on an ezboard but we are getting ready to move.

Either the test is rigged, or I am going soft

You are a Social Conservative (28% permissive) and an... Economic Liberal (36% permissive) You are best described as a: Totalitarian Link: The Politics Test on OkCupid Free Online Dating Also: The OkCupid Dating Persona Test

Have you heard of Rindercella???

Rindercella (Cinderella)-by Archie; a HeeHaw man.

Tunce upon a whine, in a coreign fountry, there lived a geautiful
birl and her name was Rindercella. Rindercella lived with her mugly
other and her two sad blisters. Also, in this same coreign fountry,
there lived a very prandsome hince.

Now, this prandsome hince was going to have a bancy fall, so he
invited all the people for riles amound, especially the pich reople.
So, Rindercella's mugly other and her two sigly usters went out to
get some dancy fresses to wear to the bancy fall. But, Rindercella
couldn't go because all she had to wear was some old rirty dags. So,
she just cat down and scried.

Well she was kitten there scrying, and all of the sudden, there
appeared before her, her gairy mudfather. And she waved her wagic
mand and there appeared before her a kig boach and hix white sorses
to take Rindercella to the bancy fall! ''But,'' she warned her, ''you
be home before nidmight or I'll purn you into a tumpkin.''

So, Rindercella went to the bancy fall and she was det at the moor
by the prandsome hince, because he had been watching from behind a
widden hindow. And, as soon as they met, they lell in fove! And,
nanced all dight, until nidmight. Then, the stock clucked nidmight,
and Rindercella staced down the rairs. And, just as she beached the
rottom, she slopped her dripper!

Well, the next day, the prandsome hince went all over the coreign
fountry looking for the geautiful birl who had slopped her dripper.
He came to Rindercella's house and tried it on her mugly other, and
it fidn't dit. He tried it on her two sigly usters, and it fidn't
dit. Then he tried it on Rindercella and it fid dit. So, they were
married and lived heavily ever hapwards.

Now, the storal to this mory is: If you ever go to a bancy fall and
want to have a prandsome hince lall in fove with you, don't forget
to slop your dripper

And my elf fling man??

this is what he thinks of your gnome!

I am reconsidering letting the gnome go

that crazy witch woman thinks she can slam on MY ELF fling and get away with it?? I will have you know he was wayy better than your little gnome half man.

no way no how woman..bring it!

and to see this crazy witch woman... http://onorach.blogspot.com/

I am an evil gnome kidnapper

Meet Hairy...er...Harry.


I have kidnapped him. I am holding him ransom. His owner- mistress will never see him again unless she meets my ransom demands.

More to follow.

and do not involve the gnome police. doing so will result in instant deletion.

I just don't know what to do with him

He is always so angry. I can't handle him very well right now. I leave the room and I hear him screaming 5 minutes later. Of course, the doctors are still not doing anything right now. I can't even get one to call me back. That makes me angry more than anything.
I know his behavior is out of his control....but there are things that could help him-and the doctors are denying him that!
*sigh*
Here it goes..putting in another phone call now.

Possibly getting a child from New Orleans

my friend, Becky mentioned to me yesterday that Idaho just got 500 children from New Orleans that need homes. They are desperate for people to take these children in because our foster homes are full. Instantly, I thought "maybe we could do it!"

I talked to Shawn and he was open to the idea of getting a child. I would take more in that 1 child if we had more room in the vehicle. So today I am just thinking and thinking about it. The kids are open to it....I talked to them right after Shawn to see what they would think. They were very excited. But will they let me homeschool the child? Or would I have to put them into school?? My concern with that is that the child would not have my kids there with her/him and it wouldn't be as fair (IMO anyway) I am also worried that I won't be good enough. I am sure that he/she would have some emotional issues having just lost home and probably family. I am rambling. I have so much going through my head. I never thought that I might want to have a foster child... but I just keep seeing the 500 homeless children go through my head andit pulls at my heart. I want to act quickly, but I want to make sure too that I will be doing what is best for this child.

Susan Anne Catherine Torres has died

Born last month at the gestational age of 27 weeks, she passed on this weekend from heart failure following emergency surgery to fix a perforated intestine.
This last year, the story of Susan Torres hit headlines with a frenzy. Collapsing at work and finding out that she had a stage 4 melanoma -- inducing a coma that she would never come out of. Being kept alive so that her baby girl could be born to be with the family. What heart wouldn't wrench when reading that story?
And now, after a month long struggle to live, the very premature baby, who weighed only 1lb 13 oz at birth, has died.
To have such a short life here on earth. Its a tragedy. And through my tears, I cannot say much more. I would hope that if something like this happened to me, that my husband would have the strength to do what Susan's husband did.
Please pray for Jason Torres, their son Peter (who has lost his mother and now his baby sister) and the rest of their family.

September 11...It just will never be the same.

September 11, 2001.

In rememberance of all those that lost their lives that day.

The mothers, fathers, sons, daughters, brothers, sisters and friends and heroes.

You will not be forgotten. You are in our hearts. You will carry on.


September 11, 2001--it seemed like just an ordinary day. Shawn was home from work that day as it was his day off. I remember him getting out of bed and walking out to the living room, and then hearing him run back in and yelled "Someone just blew up the World Trade Center!!!"

It didn't sink in at first, but hearing the emotion in his voice, I instinctively jumped out of bed and ran out to the TV with him. I really didn't "get" what the WTC was all about. I never paid attention much in school when we learned about it. I barely watched the news before 9-11. The WTC was just a word I heard in passing, but had no clue what it really was. But as the images were shown on tv all I could see was the countless lives that were lost. The horror on the peoples faces that were there. And I sat down and cried. I think we sat for 3 hours just staring at the tv. The kids were homeschooled - and we did not even do school that morning. All that day and all through the night I watched the images. I watched the firefighters and police officers and paramedics do a job that no person should ever have to do. I watched the grief, the sorrow, the bewilderment on faces that were there when it happened. And I just thought to myself, "Why??"

We did not see the actual crashing of the planes into the building, but we saw them collapse. We saw right after the plane crashed in Pennsylvania. We saw the replays over and over. We went around in a daze that day. Everything seemed so insignificant in comparison. I remember going to the store and being in such a fuge that I did not hear the cashier talking to me. All I could do was look at the man bagging my groceries and say "did you hear?"

2996 human beings confirmed/reported dead and missing.

2996.

That is a lot of human life to be lost.

Gender, sexuality, religion, nationality it does not matter.

2996 is a lot of human lift to be lost.

Until that day I was naive. I truly had NO IDEA that there were people out there that hated our country that much, hated everything that our citizens are and how we live....hated us so much that they would just kill like that. Until that day, words like Bin Laden, Iraq, Iran, Jihad...none of those were in my vocabulary. Well, they are now.

Today, the Dalai Lama is visiting Idaho. He is talking of world peace and a hope for healing. I know that I am going to listen to what he has to say. I only wish that everyone else could and would listen to the message as well.

Did I mention I had pneumonia???

I think my life is falling apart. Or maybe it is just my body! LOL

We moved and I was pretty sick. Coughing really bad and just generally having a hard time. Shawn was always mad because I was so sick I could not help pack. He got pretty ticked for awhile, but I was doing the best I could. We moved and started settling in. Finally after a week Shawn finally said "I am taking you to the doctor!"

In we go to the doctor-no insurance so I was really NOT wanting to be there-and my O2 levels were down to 94. I had pneumonia. They gave me a shot of rocephin right there...dang that stuff stings!! And some antibiotics.

3 weeks later, I am still coughing some. If I start to laugh a lot, my lungs protest and I end up with a coughing fit. I've never been this sick before...and it really sucks!

We started school this week. The kids are very excited. I think they are most excited for Latin and Ancient History. My In-Laws were here a few weeks ago, and my FIL started in on Shawn with the whole "you need to put these kids back in school" routine.

Uhm--thanks but NO. Our children, our decision. Just because you are an educator does not mean that you know best for MY kids. Shawn and I have made the decision TOGETHER that this is best.

I broke a molar this last week. Have I ever mentioned my TERROR of the dentist?? They had to drill out some decay that happened under my filling and he said "we are going to numb you up" I said "NO YOU ARE NOT!!" so they drilled without it, and I did ok. I was literally sick. I HATE THE DENTIST!!

I had an episode at wal-mart the other day too. Noah (who you know has issues) was playing with the men's ties. Doing no harm at all. This employee yells at him! YELLS! She had the worst tone of voice..I really could not believe it. I confronted her and said "the next time you want to yell at a child, why don't you try FINDING THE PARENTS instead!! You are an employee of this store, NOT HIS MOTHER and you have NO RIGHT to talk to thim that way!" I said a few more things, but that was the gyst of it. grrr....darned wal-mart....it gets me everytime!