Friday, March 21, 2008


Noah had a follow up with his doctor today. (this was the newer doctor, the one that only saw him for one phase of his neuro psych testing)

besides the brain injury, neurogenic irritability and hyperactive response etc....

We officially have the diagnosis of an Autism Spectrum Disorder...aspergers.

He is also showing some signs of having some Tics-but he doesn't think it is a sign of OCD.

we switched his medication because his other was making him gain so much weight.

I walked out to the van after the appointment and just started crying. I didn't want to have this. I didn't want him labeled. I didn't want this diagnosis.

We discussed the possibility of repeating all his neuropsych testing to see where we are at-if any different than 3 years ago or if a different consensus would come up with the team where before the one doctor (not the one we saw today) was so set with one theory of what was wrong with him

He also seriously needs to undergo physical therapy as his one leg is very off when he walks...I can't even describe how bad his leg is, but you don't notice so much because his body compensates for it

I don't know what else to think at this point. I just want to curl up and cry and process it all, but then I am trying to not let him see how upset I am.

we knew there was a chance this would happen...I just didn't believe it would actually come to this.

The only good was the knowledge that whatever happened to him in-utero (stroke or whatever) did not show any brain damage on his thank God for that.

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